- Klippel-Feil Syndrome
- Interviews
Amanda's interview
How did all start?
Have always had neck problems and pain, but didn’t have an X-ray until 2018 when congenital fusions were discovered.
Do you already have a diagnosis? How long did it take you to get it?
Not diagnosed officially. Have had X-rays, MRI and met with orthopaedic surgeon but no mention of kfs. I’ve read up on the internet and this seems to be the right fit.
For what medical specialties have you been treated? What has been the most useful specialty for your?
GP, chiropractor, orthopaedic surgeon and physiotherapist. The best so far has been physio who specialises in musculoskeletal problems.
What has been the most useful thing for you so far?
Physiotherapist
What have been your biggest difficulties?
Pain.
