There are 56 people in the Leber Hereditary Optic Neuropathy map
57 people with Leber Hereditary Optic Neuropathy have joined the DiseaseMaps community map. They have shared 101 first-person answers and 3 stories about living with the condition.
My son was diagnosed at 17 with Lebers 3640 G strain as well as other previous health issues. We are learning slowly how to cope in new ways for him. He will be going to Branford in the fall to the school for the blind. It's a devastating disease , w...
1 people with Leber Hereditary Optic Neuropathy have taken the SF36 survey. Mean of Leber Hereditary Optic Neuropathy is 3145 points (87 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey