The long and winding road
Aug 22, 2017
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Giles is my first born son.He was breach presentation and delivered by c section. He was so miserable as a baby and not passing the standard child development milestones. Because we had private medical insurance we were able to get accesss to a paediatric consultant and MRI scans quickly.
aged 10 months after a week of tests at GOSH he was diagnosed with Lesch Nyhan Disease - this was just the start
I had a brother who was diagnosed with spastic cerebral palsy who died aged 8 years old in 1958
To be continued
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