- Lichen Sclerosus
- Interviews
cyclonecasey's interview
How did all start?
I had symptoms as a child, itchiness, difficulty defecating, splits. I was always too embarrassed to bring it up and when I did it was misdiagnosed as thrush or anal fissures.
Do you already have a diagnosis? How long did it take you to get it?
I don’t know exactly how old I was when symptoms first surface but I didn’t get diagnoses until I was around 20 years old.
What has been the most useful thing for you so far?
Diprosone has been the best overall treatmeant.
Pomade Potassium was great at the beginning, when flat up was at it’s worse.
Lignocain has also helped a lot in terms relaxing and preventing splits.
What have been your biggest difficulties?
Deffication. Because of how long I went undiagnosed I don’t really know how to have proper BMs, it’s often painful as I’ve never seemed to be able to get that one specific area under control.
How has your social and family environment reacted? Have your social or family relationships changed?
My mum is supportive and when I visit her often reminds me to ‘try’ have a BM.
My sexual partners have been very kind, understanding, patient, and gentle. I’m very lucky in that regard.
What things have you stopped doing?
I don’t think there’s anything I’ve stopped doing. Of course, I’ve had it since childhood.
What do you think about the future?
I’ve read that there are supposedly some possible links between the O-shot and the treatment and possible cure for LS, if I could ever afford it I’d love to try that sometime.
So far, which years have been the best years in your life? What have you done during them?
Probably this year.
What would you like to do if you didn’t have your condition?
Just, never get backed up again.
