There are 194 people in the Loeys Dietz syndrome map
208 people with Loeys Dietz syndrome have joined the DiseaseMaps community map. They have shared 285 first-person answers and 2 stories about living with the condition.
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The John Ritter Foundation for Aortic Healt...
13 people with Loeys Dietz syndrome have taken the SF36 survey. Mean of Loeys Dietz syndrome is 1607 points (45 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey