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Which advice would you give to someone who has just been diagnosed with Malignant hyperthermia?

Advice for the newly diagnosed with Malignant hyperthermia, written by people who have lived it. What they wish they had known on day one.

Malignant hyperthermia advice
2 answers
Contact MHAUS. They are the authority on all things MH.

Posted Mar 4, 2017 by Stephanie Baker 300
Learn all you can about it because this is about your life. This is not a game and your the one and only one that cares more about your life than anyone else. The best advice is be your own advocate. Always and I mean always,talk to the anesthesiologist. CRNA is the best one to talk too if you can. Make sure they answer your questions and make you feel comfortable. Because again THIS IS YOUR LIFE and you are important. If they don't answer your questions and don't make you feel comfortable, then don't have surgery there.

Posted Mar 29, 2017 by Lori Colegrove 1000

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MALIGNANT HYPERTHERMIA STORIES
Malignant hyperthermia stories
I broke my nose and had an operation to correct it and awoke in intensive care in a different hospital.  I was lucky the anethastist new what it was. Then I had a musel biopsy couple of months later to confirm.    Then my mum, grandma,  my two ...
Malignant hyperthermia stories
Born in Appleton, WI and my dad's side if the family is the carrier and they are mostly in the Wausau area

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