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Living with Malignant hyperthermia. How to live with Malignant hyperthermia?
Living with Malignant hyperthermia: how patients cope day to day and stay positive - real experiences and practical tips.
Just live your life like any normal person and don't let anyone tell you how to live. Don't let anyone tell you not to have kids or not to get married. You can be happy just like everyone else. You just need to wear a medical alert at all times with it stating MH and the 1-800 number on it. Make your kids wear a medical alert also. Put a flyer with do's and don'ts with Malignant Hypothermia. Actually I put a blow up of the MH card on neon yellow paper in the glove box of all vehicles. Tell your friends you ride with your allergic to anesthesia. NOTE IT ON ALL MEDICAL RECORDS. Don't forget kids school records. It becomes the norm and simple. I am 52 and have two beautiful girls. Just to give you an idea that life goes on here is what I had done.
Malignant Hypothermia episode (full blown episode from surgery- tonsils )- 1972
Biopsy 1981
Tonsils 1982
Childbirth 1986 (8 lb 2oz)
Tumor off neck 1988
Childbirth 1988 (8lb 6oz)
Multiple Steroid surgeries 2014-2016
Gastric Bypass 2011
Obgyn surgery 2017
Malignant Hypothermia episode (full blown episode from surgery- tonsils )- 1972
Biopsy 1981
Tonsils 1982
Childbirth 1986 (8 lb 2oz)
Tumor off neck 1988
Childbirth 1988 (8lb 6oz)
Multiple Steroid surgeries 2014-2016
Gastric Bypass 2011
Obgyn surgery 2017
Posted Mar 29, 2017 by Lori Colegrove 1000
