7

Living with Malignant hyperthermia. How to live with Malignant hyperthermia?

Can you be happy living with Malignant hyperthermia? What do you have to do to be happy with Malignant hyperthermia? Living with Malignant hyperthermia can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Malignant hyperthermia

Living with Malignant hyperthermia
1 answer
Just live your life like any normal person and don't let anyone tell you how to live. Don't let anyone tell you not to have kids or not to get married. You can be happy just like everyone else. You just need to wear a medical alert at all times with it stating MH and the 1-800 number on it. Make your kids wear a medical alert also. Put a flyer with do's and don'ts with Malignant Hypothermia. Actually I put a blow up of the MH card on neon yellow paper in the glove box of all vehicles. Tell your friends you ride with your allergic to anesthesia. NOTE IT ON ALL MEDICAL RECORDS. Don't forget kids school records. It becomes the norm and simple. I am 52 and have two beautiful girls. Just to give you an idea that life goes on here is what I had done.

Malignant Hypothermia episode (full blown episode from surgery- tonsils )- 1972
Biopsy 1981
Tonsils 1982
Childbirth 1986 (8 lb 2oz)
Tumor off neck 1988
Childbirth 1988 (8lb 6oz)
Multiple Steroid surgeries 2014-2016
Gastric Bypass 2011
Obgyn surgery 2017

Posted Mar 29, 2017 by Lori Colegrove 1000

Living with Malignant hyperthermia

Malignant hyperthermia life expectancy

What is the life expectancy of someone with Malignant hyperthermia?

3 answers
Celebrities with Malignant hyperthermia

Celebrities with Malignant hyperthermia

1 answer
Is Malignant hyperthermia hereditary?

Is Malignant hyperthermia hereditary?

2 answers
Is Malignant hyperthermia contagious?

Is Malignant hyperthermia contagious?

2 answers
ICD9 and ICD10 codes of Malignant hyperthermia

ICD10 code of Malignant hyperthermia and ICD9 code

2 answers
Natural treatment of Malignant hyperthermia

Is there any natural treatment for Malignant hyperthermia?

1 answer
Malignant hyperthermia diet

Malignant hyperthermia diet. Is there a diet which improves the quality of ...

2 answers
History of Malignant hyperthermia

What is the history of Malignant hyperthermia?

1 answer

World map of Malignant hyperthermia

Find people with Malignant hyperthermia through the map. Connect with them and share experiences. Join the Malignant hyperthermia community.

Stories of Malignant hyperthermia

MALIGNANT HYPERTHERMIA STORIES
Malignant hyperthermia stories
I broke my nose and had an operation to correct it and awoke in intensive care in a different hospital.  I was lucky the anethastist new what it was. Then I had a musel biopsy couple of months later to confirm.    Then my mum, grandma,  my two ...
Malignant hyperthermia stories
Born in Appleton, WI and my dad's side if the family is the carrier and they are mostly in the Wausau area

Tell your story and help others

Tell my story

Malignant hyperthermia forum

MALIGNANT HYPERTHERMIA FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map