- Marfan Syndrome
- Interviews
Henrik's interview
How did all start?
From a very young age my Rips began to grow, so i got like a bird chest. today im operated for exactely that,
Do you already have a diagnosis? How long did it take you to get it?
from i i began seing a doctor about my chest wich is a symtum for marfa 11+ years
For what medical specialties have you been treated? What has been the most useful specialty for your?
my back speacialist because of my shit back. (bad scoliosis)
What has been the most useful thing for you so far?
Ciroprakting
What have been your biggest difficulties?
Staying fulltime at my job because of back pain.
How has your social and family environment reacted? Have your social or family relationships changed?
my ( X ) Girlfriend dumped me. and my parent got like chocked over how did the doctors not see that sooner QQ
What things have you stopped doing?
playing sports,
What do you think about the future?
It look okay, im ready.
So far, which years have been the best years in your life? What have you done during them?
2009 when i got operatet
What would you like to do if you didn’t have your condition?
enjoy my work alittle more,
If you had to describe your life in a sentence, what would it be?
Bumpy
Finally, what advice would you give to a person in a similar situation?
I know it's shit. i know it's unfair. but stay true to yourself and only yourself.
