2. Mastocytosis and MCAS
3. Interviews

KateR's interview

Do you already have a diagnosis? How long did it take you to get it?

I do have a diagnosis for mast cell activation syndrome and gastroparesis. The MCAS was about a year before solid diagnosis. The GP was maybe a few months

For what medical specialties have you been treated? What has been the most useful specialty for your?

Allergist, immunologist, oncologist, hematologist, primary care doctor. The immunoglost and my primary doctor

What has been the most useful thing for you so far?

Benadryl and Epi pens

What have been your biggest difficulties?

Adjusting to the limitations I have now. Eating. Finding right doctors and medications etc

How has your social and family environment reacted? Have your social or family relationships changed?

Eh my friends know I have good and bad days. My parents think I'm faking. It's drastically changed I used to go out either friends alll of the time and now I barely have any friends

What do you think about the future?

I hope they find a cure or have something better that works

So far, which years have been the best years in your life? What have you done during them?

Any year before 2014 when I started getting sick. I was living with my best friend having fun working

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When doctors don't listen

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