When doctors don't listen

---

All of my life I have struggled with being chronically ill. I had people question if I were faking everything, so much so that after 2 ER visits sent home with stomach flu my appendix ruptured. I was sent to Psych multiple times. Prior to 2014 I was doing ok, I was working a ton and going out having fun with friends a lot. I started working at a gastroenterologist office in 2014 and I started getting sick all of a sudden. Throwing up, abdominal pain, bloating, hives and severe fatigue. They did EGD and diagnosed with Gastroparesis. I started Domperidone and I was feeling so much better until I couldn't get it compounded in the USA anymore so switched to Reglan. I was still getting sick with allergic reactions. I was referred to immunologist who was unbelievably good. He said I have one of the following: Flushing disorder, carcinoid tumor, porphyria, idiopathic anaphylaxis or mast cell activation syndrome. Through urine high prostaglandins and low IgG and high IgE. I finally got MCAS diagnosis about a year after getting sick. I was bed ridden for a year. Now I'm back to work but I still am in so much pain everyday.