62 people with McCune Albright have joined the DiseaseMaps community map. They have shared 230 first-person answers and 6 stories about living with the condition.
Dear All ,
I discovered my disease when i was 19 years old.
I had strong and frequent headaches and , after a clinical examinations, the diagnosis was a fibrous dysplasia of the skull.
AFter a few years , unfortunately I&nbs...
My brother and I both have FD - but I also have MAS. So little know about either disease. Difficult finding providers who really understand. Am told that we are the only sibs known to have FD.
5 people with McCune Albright have taken the SF36 survey. Mean of McCune Albright is 1795 points (50 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
