There is no progress in the matter of treatments for the syndrome until then.
The prognosis and quality of life are quite promising if the treatment is done correctly and if you choose a healthy lifestyle.
Dear All ,
I discovered my disease when i was 19 years old.
I had strong and frequent headaches and , after a clinical examinations, the diagnosis was a fibrous dysplasia of the skull.
AFter a few years , unfortunately I discovered have it...
My brother and I both have FD - but I also have MAS. So little know about either disease. Difficult finding providers who really understand. Am told that we are the only sibs known to have FD.