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Which are the symptoms of Multiple Endocrine Neoplasia?

Symptoms of Multiple Endocrine Neoplasia reported by real patients, from the most common to the most limiting, plus a medically reviewed summary with sources.

Multiple Endocrine Neoplasia symptoms
4 answers
Pancreatic cancer, thyroid cancer, exhaustion

Posted Oct 25, 2017 by Penny 100
Bone pain and not being able to think coherently

Posted Oct 25, 2017 by Mrcperk 2000
I have MEN2A, which is often silent ( minimal to no symptoms). For the thyroid cancer, there were no symptoms at all. It was only picked up bec the Drs figured out Mom had MEN2A after her adrenal tumor diagnosis. For the adrenal tumor, I did have "spells", where my heart would race, the blood would drain from my face and I would feel nauseous. It would often happen in the middle of the night, waking me up from sleep. I would also have shaky hands during the spells. The spells would pass if I squatted, but would start back up if I laid down too soon. The spells started before they could pick the adrenal tumors up on MRIs and CT scans.

Posted Feb 25, 2018 by Pam 300
There may not be any symptoms.
Blood pressure issues
Dizziness
Thyroid problems

Posted Sep 3, 2019 by Crystal 1750

Multiple Endocrine Neoplasia symptoms

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Celebrities with Multiple Endocrine Neoplasia

1 answer
Is Multiple Endocrine Neoplasia hereditary?

Is Multiple Endocrine Neoplasia hereditary?

3 answers
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Is Multiple Endocrine Neoplasia contagious?

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ICD9 and ICD10 codes of Multiple Endocrine Neoplasia

ICD10 code of Multiple Endocrine Neoplasia and ICD9 code

2 answers
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Living with Multiple Endocrine Neoplasia

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World map of Multiple Endocrine Neoplasia

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Stories of Multiple Endocrine Neoplasia

MULTIPLE ENDOCRINE NEOPLASIA STORIES
Multiple Endocrine Neoplasia stories
I am 39 with a loving husband and two young kids and unfortunately MEN2A.  I was diagnosed in the fall of 2015.  I had recurrent hyperparathyroidism that I couldn't get any doctor to take seriously despite being a physician myself.  I finally foun...
Multiple Endocrine Neoplasia stories
I am the caregiver of my 4 family members who suffer from this disease. My husband and our 3 daughters were diagnosed in 2013.  Their treatment is in our hometown of St. Louis, MO.  It spins my mind how this disease starts so simple but is far from...
Multiple Endocrine Neoplasia stories
I was discovered to have MEN2a (c634) in 2000 after surviving a rather large and active phaeochromocytoma.  Subsequently I was offered genetic testing and was then diagnosed with medullary thyroid cancer - my thyroid was removed.  My son (then 2) a...
Multiple Endocrine Neoplasia stories
In April of 2016, My mother died right after she had surgery for a Meckles diverticulum and developed 2 blockages as she couldn’t ever quit having diarrhea and vomiting post surgery which lead to weakness and a diagnosis of Zollinger-Ellison. We n...

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