There are 395 people in the Nail-patella syndrome map
413 people with Nail-patella syndrome have joined the DiseaseMaps community map. They have shared 297 first-person answers and 19 stories about living with the condition.
I was born with only thumb nails affected and my mom knew it was something genetic from my grandma's side. At 2 I had double hip dysplasia. At 19 was determined to have squared knee caps. My mom had a hysterectomy in her 50s and an xray tech noticed ...
No thumbnails hasn't been a huge problem in my life, being male. The elbows have been though. Well, except for that time in 1971 when they kept me from being drafted into the VietNam conflict. 4F'd 10 minutes into the physical down in Detroit. The el...
I was born with NPS. We traced it back and apparently I was the first. I ended having kidney disease and having a kidney transplant in February 1975. My son and daughter are also affected. My son has to have a kidney transplant also but as of now my ...
My story begins with saying that I knew something was wrong at a young age but it was not until I was older that I got diagnosed with NPS. I was a active child, I always had pain in my knees and issues with my teeth as log as I can remember, but noth...
9 people with Nail-patella syndrome have taken the SF36 survey. Mean of Nail-patella syndrome is 2107 points (59 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
