There are 96 people in the Nemaline Myopathy map

102 people with Nemaline Myopathy have joined the DiseaseMaps community map. They have shared 160 first-person answers and 12 stories about living with the condition.

Nemaline Myopathy life expectancy

What is the life expectancy of someone with Nemaline Myopathy?

4 answers
Celebrities with Nemaline Myopathy

Celebrities with Nemaline Myopathy

1 answer
Is Nemaline Myopathy hereditary?

Is Nemaline Myopathy hereditary?

2 answers
Is Nemaline Myopathy contagious?

Is Nemaline Myopathy contagious?

2 answers

Nemaline Myopathy top 25 questions

Stories of Nemaline Myopathy

STORY
Nemaline Myopathy stories
NEEDLE IN A HAYSTACK
Nemaline Myopathy stories
OUR FOURTH DAUGHTER BORN STARTED TO FAIL AT ABOUT TWO WEAKS THAT WE NOTICED. FIRST WEIGHT LOSS THEN JUST PHYSICALLY WEAKER BY THE MINUTE. UNABLE TO SUCK SWALLOW AND BREATH. THROUGH TESTING AND DIAGNOSIS WE HAVE LEARNED SHE HAS A NEW MUTATION. MUSCLE BIOP
Nemaline Myopathy stories
NEMALINE MYOPATHY
Nemaline Myopathy stories
IT'S BEEN A LONG ROAD
Nemaline Myopathy stories
BRUNA'S STORY
Tenho 20 anos , descobri a Nemalínica com 3 anos de idade através de biópsia. Atualmente sou cadeiras e faço uso de ventilação mecânica nasal .

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Nemaline Myopathy forum

QUESTION

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Statistics of Nemaline Myopathy

5 people with Nemaline Myopathy have taken the SF36 survey. Mean of Nemaline Myopathy is 1666 points (46 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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