Story about Nemaline Myopathy .

Nemaline 6 myopathy

Oct 21, 2020

By: A

Year Condition Began: 1969


Hi, I was diagnosed at 45 years old after a lifetime of being dismissed. It was only finally after having a biopsy that I was taken seriously. I was wanting to share experiences and and tips on helping the condition, or even motivation in doing my excersises.
Thanks
A

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