Is it advisable to do exercise when affected by Nemaline Myopathy? Which activities would you suggest and how intense should they be?

See if it is advisable for people with Nemaline Myopathy to practice sports and which ones are the most recommended if you have Nemaline Myopathy

3 answers

Regular physiotherapy/hydrotherapy is recommended for people with this condition, as it is important to maintain muscle strength if possible. The physical activity should not be too intense however as this is difficult for those with muscle weakness.

Posted Feb 24, 2017 by Star 1270

Exercise is good but not to cause fatigue or break down muscles. Active life is good. Isometric exercise is best along with swimming/pool therapy!

Posted Aug 29, 2017 by Mary Jo Draisma 2100

Translated from portuguese Improve translation

physiotherapy of the muscle to not atrophy the muscles - pilates

Posted May 29, 2017 by Danielle 1150

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Stories of Nemaline Myopathy

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OUR FOURTH DAUGHTER BORN STARTED TO FAIL AT ABOUT TWO WEAKS THAT WE NOTICED. FIRST WEIGHT LOSS THEN JUST PHYSICALLY WEAKER BY THE MINUTE. UNABLE TO SUCK SWALLOW AND BREATH. THROUGH TESTING AND DIAGNOSIS WE HAVE LEARNED SHE HAS A NEW MUTATION. MUSCLE BIOP

Same as above

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8/29/17, 12:33 AM by Mary Jo Draisma

NEEDLE IN A HAYSTACK

Doctors had never seen a person with this disease before me. They said it was very rare. Eventually I found others online and we are a like family. The nemaline myopathy support group on Facebook is a great resource community.

395

8/29/17, 9:09 AM by Greybeard

NEMALINE MYOPATHY

ACTA1 ;mild to severe side; NIV/night, Gtube, spinal curvature >70, surgery never done/considered too risky by local surgs Complicated labor-ischemic hypoxia autistic, failure to thrive used to walk 2 to 5 years declining :(

386

8/29/17, 1:32 AM by Laura

BRUNA'S STORY

Tenho 20 anos , descobri a Nemalínica com 3 anos de idade através de biópsia. Atualmente sou cadeiras e faço uso de ventilação mecânica nasal .

326

7/20/17, 9:29 PM by Bruna

IT'S BEEN A LONG ROAD

I was born with the condition Nemaline Myopathy & have always had muscle weakness, but I wasn't diagnosed with it until I was 43. I suffer from Ehlers Danlos Syndrome and in my long trail of searching for help and answers for that condition I ended u...

313

8/29/17, 9:16 AM by Peter

Is it advisable to do exercise when affected by Nemaline Myopathy? Which activities would you suggest and how intense should they be?

See if it is advisable for people with Nemaline Myopathy to practice sports and which ones are the most recommended if you have Nemaline Myopathy

Nemaline Myopathy sports

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ICD10 code of Nemaline Myopathy and ICD9 code

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