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What is the life expectancy of someone with Nemaline Myopathy?
Life expectancy with Nemaline Myopathy: what research and real patients say, recent advances, and a medically reviewed summary with sources.
In very rare cases, Nemaline Myopathy can cause mortality in infants. However the majority of people with the condition will live average length lives.
Posted Feb 24, 2017 by Star 1270
I think during the first year it's very critical. Then the next few are also. The chances of lung issues is great. Strength can be gained with hard work. Maybe middle school age or teens go through froth and that makes it difficult again. Any cold can cause Respitory failure or other complications. Living longer is possible and always keeping up on treatments will help.
Posted Aug 29, 2017 by Mary Jo Draisma 2100
Translated from portuguese
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the only complaint of this disease can be a complication of pneumonia
Posted May 29, 2017 by Danielle 1150
