There are 19 people in the Oral-Facial-Digital Syndrome map
21 people with Oral-Facial-Digital Syndrome have joined the DiseaseMaps community map. They have shared 100 first-person answers and 5 stories about living with the condition.
I am a 27 year old female who was born with a rare syndrome known as OFD-1 or Oral Facial Digital Syndrome Type 1. It affects my teeth, tongue, nose, fingers, toes, and scalp. I have severe TMJ. My jaws are misaligned and its very painful w...
0 people with Oral-Facial-Digital Syndrome have taken the SF36 survey. Mean of Oral-Facial-Digital Syndrome is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
