There are 4 people in the Pachyonychia Congenita map
4 people with Pachyonychia Congenita have joined the DiseaseMaps community map. They have shared 92 first-person answers and 1 stories about living with the condition.
2 people with Pachyonychia Congenita have taken the SF36 survey. Mean of Pachyonychia Congenita is 1828 points (51 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey