There are 98 people in the Parry-Romberg syndrome / Progressive hemifacial atrophy map

107 people with Parry-Romberg syndrome / Progressive hemifacial atrophy have joined the DiseaseMaps community map. They have shared 237 first-person answers and 2 stories about living with the condition.

Parry-Romberg syndrome / Progressive hemifacial atrophy life expectancy

What is the life expectancy of someone with Parry-Romberg syndrome / P...

3 answers
Celebrities with Parry-Romberg syndrome / Progressive hemifacial atrophy

Celebrities with Parry-Romberg syndrome / Progressive hemifacial atrop...

1 answer
Is Parry-Romberg syndrome / Progressive hemifacial atrophy hereditary?

Is Parry-Romberg syndrome / Progressive hemifacial atrophy hereditary?

1 answer
Is Parry-Romberg syndrome / Progressive hemifacial atrophy contagious?

Is Parry-Romberg syndrome / Progressive hemifacial atrophy contagious?

1 answer

Parry-Romberg syndrome / Progressive hemifacial atrophy top 25 questions

Stories of Parry-Romberg syndrome / Progressive hemifacial atrophy

STORY
Parry-Romberg syndrome / Progressive hemifacial atrophy stories
ACCEPTANCE
My first symptoms showed up at about 4 or 5. Alopecia and skin discoloration. Slowly it progressed and at about 10 My parents began the search. I was officially diagnosed at 12 by doctors at UCLA. I was then sent to UCSF and went through several team...

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Parry-Romberg syndrome / Progressive hemifacial atrophy forum

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Statistics of Parry-Romberg syndrome / Progressive hemifacial atrophy

3 people with Parry-Romberg syndrome / Progressive hemifacial atrophy have taken the SF36 survey. Mean of Parry-Romberg syndrome / Progressive hemifacial atrophy is 1640 points (46 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Parry-Romberg syndrome / Progressive hemifacial atrophy