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How is Parry-Romberg syndrome / Progressive hemifacial atrophy diagnosed?
See how Parry-Romberg syndrome / Progressive hemifacial atrophy is diagnosed. Which specialists are essential to meet, what tests are needed and other useful information for the diagnosis of Parry-Romberg syndrome / Progressive hemifacial atrophy
It can be diagnosed through lab work, MRI, or skin biopsy.
Posted Mar 4, 2017 by Hannah 1050
After half a dozen years and as many doctors, I was finally diagnosed within seconds by a facial reconstruction/plastic surgeon.
You will most likely have to educate yourself looking up articles in medical libraries and then educate your doctor (since it is such a rare disease, medical books on hand don't reference it).
If you get a doctor with a god complex who doesn't like being told they don't know everything, you should probably come prepared, which happened to me. Ask for a second opinion or referral and move on. You are your own best advocate.
You will most likely have to educate yourself looking up articles in medical libraries and then educate your doctor (since it is such a rare disease, medical books on hand don't reference it).
If you get a doctor with a god complex who doesn't like being told they don't know everything, you should probably come prepared, which happened to me. Ask for a second opinion or referral and move on. You are your own best advocate.
Posted Mar 4, 2017 by Barbara 1000
