Living with Parry-Romberg syndrome / Progressive hemifacial atrophy. How to live with Parry-Romberg syndrome / Progressive hemifacial atrophy?
Living with Parry-Romberg syndrome / Progressive hemifacial atrophy: how patients cope day to day and stay positive - real experiences and practical tips.
I guess each person comes at it with their own set of personality strengths and weaknesses and develop their own philosophy on how to handle trials in life.
Of course you can be happy!!!!
Once it is diagnosed, and is accepted the disease, you can go ahead and with the hope that medical science advances and be able to contribute to improving the quality of life of the patients..
Find people with Parry-Romberg syndrome / Progressive hemifacial atrophy through the map. Connect with them and share experiences. Join the Parry-Romberg syndrome / Progressive hemifacial atrophy community.
My first symptoms showed up at about 4 or 5. Alopecia and skin discoloration. Slowly it progressed and at about 10 My parents began the search. I was officially diagnosed at 12 by doctors at UCLA. I was then sent to UCSF and went through several team...