What is the history of Parry-Romberg syndrome / Progressive hemifacial atrophy?
History of Parry-Romberg syndrome / Progressive hemifacial atrophy: when and how it was discovered, and the milestones in research since, medically reviewed.
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My first symptoms showed up at about 4 or 5. Alopecia and skin discoloration. Slowly it progressed and at about 10 My parents began the search. I was officially diagnosed at 12 by doctors at UCLA. I was then sent to UCSF and went through several team...