Living with Pemphigoid. How to live with Pemphigoid?

Living with Pemphigoid: how patients cope day to day and stay positive - real experiences and practical tips.

3 answers

Find the right doctor to treat your disease. Not every doctor knows enough about it. Make sure you learn to deal with a chronic, possible severe illness, if necerary find psychological help. But most of all, keep realising there is more to life than your disease!

Posted Apr 27, 2017 by Annemiek van Dijk 1150

It can get annoying living with blisters everywhere but you can get used to learning how to treat it and you can live a normal happy life.

Posted May 1, 2017 by Sam 1100

Protect your skin from irritation and injury. ...
Wash your hands. ...
Look for signs of infection every day. ...
Follow your treatment plan. ...
Care for mouth sores. ...
Keep all follow-up medical appointments. ...
Get support.

Posted Oct 17, 2022 by Jason 4550

Living with Pemphigoid

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Stories of Pemphigoid

PEMPHIGOID STORIES

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NOT KNOWING WAS THE WORST

I was diagnoised in 2007 but symptoms began in 2005. I went to an ENT because i could barely breath through my nose. After the standard blood work he found nothing, my doctor was convinced i was mutilating myself because there was no way my nose was ...

1015

7/13/26, 9:45 AM by Juanita Jacobs

SHAARI ARTHUR'S STORY

Hi. I am a 55 year old woman with a recent diagnosis of Mucous Membrane Pemphigoid. It is only oral at this point. Fortunately, as of now my symptoms are not too severe and the pain is bearable. I was very fortunate that my dentist was on top of thi...

906

7/13/26, 9:45 AM by Shaari Arthur

AUTOIMMUNE MADNESS!

I assumed the pain and bleeding of my gums were associated with my having Celiac disease. After a year of watching my symptoms and failed remedies my dentist sent me to an oral surgeon who knew right away what it was. I had a biopsy with immunoflou...

831

7/13/26, 9:45 AM by Audria Lewis

ANNE GRIFIN'S STORY

I have Bullous Pemphigoid. I have had blisters on my back, stomach, feet, chest, face and in my mouth/gums. It got really bad in my mouth and before being diagnosed and I began treatment, was almost unbearable pain/itching while on my back. I was on ...

800

7/13/26, 9:45 AM by Anne grifin

WHEN WILL IT END?

_diagnosed 1988. On prednisone and (intermittently) imuran ever since. I've heard most people cycle out but I have not been so lucky. _

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by Suz

Living with Pemphigoid. How to live with Pemphigoid?

Living with Pemphigoid: how patients cope day to day and stay positive - real experiences and practical tips.

Living with Pemphigoid

What is the life expectancy of someone with Pemphigoid?

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Celebrities with Pemphigoid

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Is Pemphigoid hereditary?

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Is Pemphigoid contagious?

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ICD10 code of Pemphigoid and ICD9 code

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Is there any natural treatment for Pemphigoid?

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Pemphigoid diet. Is there a diet which improves the quality of life of peop...

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What is the history of Pemphigoid?

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