There are 43 people in the Congenital bilateral perisylvian syndrome map
45 people with Congenital bilateral perisylvian syndrome have joined the DiseaseMaps community map. They have shared 267 first-person answers and 4 stories about living with the condition.
What started out as my boy was just missing milestones, turned into more serious frequent pneumonia hospitalizations, weak immune system, troubles aspirating and swallowing foods. We did genetic testing for years and everything kept coming back norma...
2 people with Congenital bilateral perisylvian syndrome have taken the SF36 survey. Mean of Congenital bilateral perisylvian syndrome is 1353 points (38 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
