My life

---

I was born in 1994 in the North of France with phenylketonuria. It was really difficult to my parents to handle the news but they managed it and did a great work during my growth. Even with no all the tools provided by the internet, they succeeded in teaching me how to enjoy like and feel as a everyone else. I considered myself as someone with a specialty, but not a disease.

I grew up without knowing others PKUers and it sounded good to me because I had never been confronted to someone who consider it as a disease. I was a science boy and I wanted to learn all the knowledge of the world.

I graduated from high school and decided to thoroughly study to access to the most important engineering schools of France. After two years, I was selected by a major engineering school in chemistry and I'm currently finishing my last year. The next year I'll be a chemical engineer specialized in management and marketing b-to-b.

In parallel, I finally met the French organization "Les Feux Follets" which helps families and fights for the rights of people affected by phenylketonuria. I became the president of the Youth Council and a board member. I met a lot of great people thanks to this organisation. Not only in France but in others countries too thanks to the ESPKU (European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria).