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Can people with Phenylketonuria work? What kind of work can they perform?

Can you work with Phenylketonuria? Real patients share what jobs they do and how they adapted, plus practical guidance.

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4 answers
Yes. If the disease is properly controlled and maintained an effected person could live a normal life.

Posted Feb 24, 2017 by Levi Christopher Lucero, Jr. 2185
Of course they can work. Nothing can stop people with PKU from working.
If there is no brain damage or severe intellectual disability involved then people with PKU can work in any field.

Posted Sep 18, 2017 by Georgina 1300
PKU while annoying at times, can sometimes limit ones ability to work. I have found that even in drinking all my formula and being on diet I tend to be less able to handle physically demanding jobs. My energy comes from the formula and I have to take extra vitamins to supply energy. Also when I am working there is a fog and forgetfulness is a real problem. I have not been able to hold a job due to forgetfulness even on the diet. It varies case by case though. PKU people are just as intelligent as the next person and it may not make each person weak as it does me.

Posted Sep 22, 2017 by Nickelle 2000
With uncontrolled pku and high Phe levels a job would be hard to manage because of the anxiety and pressures of a job. The personality disorders that seem to present themselves with high levels would make a job very very difficult.
With managed phe levels and a low protein diet a job should be easy. Of course this is along with a strict diet and formula.

Posted Jan 28, 2020 by Ryan 600

Phenylketonuria jobs

Phenylketonuria life expectancy

What is the life expectancy of someone with Phenylketonuria?

4 answers
Celebrities with Phenylketonuria

Celebrities with Phenylketonuria

1 answer
Is Phenylketonuria hereditary?

Is Phenylketonuria hereditary?

3 answers
Is Phenylketonuria contagious?

Is Phenylketonuria contagious?

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ICD9 and ICD10 codes of Phenylketonuria

ICD10 code of Phenylketonuria and ICD9 code

2 answers
Natural treatment of Phenylketonuria

Is there any natural treatment for Phenylketonuria?

3 answers
Living with Phenylketonuria

Living with Phenylketonuria. How to live with Phenylketonuria?

2 answers
Phenylketonuria diet

Phenylketonuria diet. Is there a diet which improves the quality of life of...

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World map of Phenylketonuria

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Stories of Phenylketonuria

PHENYLKETONURIA STORIES
Phenylketonuria stories
Hello to everyone that reads! im currently 19 with a PKU toddler! he was born march 7th 2014. got a call on the 12th and then took a nice long ride a ccouple hundred miles away on the 14th to my son's pku clinic. they explained everything to me and h...
Phenylketonuria stories
Found out my baby daughter has got PKU, still getting my head around it all
Phenylketonuria stories
I was a month old went the doctors  told my parents that I have pku. I'm 42 years old. I got married in 2005. To a really nice guy but in 2009 my husband passed away on February 13, 2009. At that time I went off diet for 5 years.  And it really mes...
Phenylketonuria stories
It's actually my children that have PKU. Both diagnosed within ten days of birth and doing very well. My daughter is now nearly ten and currently on 7.5 exc. per day. My son is 5 and on 7 exc. per day.  Both are treated at Bristol Childrens Hospit...
Phenylketonuria stories
Hi! I'm Andreia. I'm 28 years old. I'm from Portugal living in irland Since 2014. I was diagnosed when I was 12 days old. Still following my diet. My family did everything they could to give me all I needed. I'm a nurse now, have a job, starting my o...

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