splopez's interview
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How did all start?
Development Delay
Do you already have a diagnosis? How long did it take you to get it?
Yes, my son was diagnosed in June 2018 and it took about 9 month to diagnose him with PCH.
For what medical specialties have you been treated? What has been the most useful specialty for your?
Neurologist
What has been the most useful thing for you so far?
Facebook support group
Sep 12, 2018
By: splopez
What is the prevalence of Pontocerebellar Hypoplasia?
Which are the causes of Pontocerebellar Hypoplasia?
Which advice would you give to someone who has just been diagnosed wit...
What are the latest advances in Pontocerebellar Hypoplasia?
Is Pontocerebellar Hypoplasia hereditary?
What is the history of Pontocerebellar Hypoplasia?
Living with Pontocerebellar Hypoplasia. How to live with Pontocerebell...
