There are 58 people in the Prune Belly Syndrome map
65 people with Prune Belly Syndrome have joined the DiseaseMaps community map. They have shared 86 first-person answers and 2 stories about living with the condition.
I was born without any abdominal muscles and a sunken in chest wall. At age 3 at Texas Childrens Hospital, Dr Abel took some oblique muscles and pulled them around to my front all horizontally. He took sutures and did a boyscout basket weave of sorts...
3 people with Prune Belly Syndrome have taken the SF36 survey. Mean of Prune Belly Syndrome is 2205 points (61 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
