- Relapsing Polychondritis
- Interviews
april ginty's interview
How did all start?
earaches, rib pain as a child
Do you already have a diagnosis? How long did it take you to get it?
30 years
For what medical specialties have you been treated? What has been the most useful specialty for your?
ENT, PA pa suggested autoimmune possibility-then was confirmed by ent-rhuematologist
What has been the most useful thing for you so far?
taking prednisone
What have been your biggest difficulties?
tiredness, pain, weight gain
How has your social and family environment reacted? Have your social or family relationships changed?
no
What things have you stopped doing?
working, teaching
What do you think about the future?
don't know
So far, which years have been the best years in your life? What have you done during them?
the 30s with my children
What would you like to do if you didn’t have your condition?
teach
If you had to describe your life in a sentence, what would it be?
a little limited but grateful
Finally, what advice would you give to a person in a similar situation?
enjoy your good days
