Short answer · Medically reviewed summary · Last updated: 2026-05-08
Retinopathy of Prematurity (ROP) is a developmental eye disorder primarily diagnosed in infants born prematurely, characterized by abnormal blood vessel growth in the retina. Because Retinopathy of Prematurity is typically identified via specialized screening in the neonatal period, adults concerned about their vision should look for late-onset complications such as high myopia, retinal detachment, or strabismus. How is Retinopathy of Prematurity identified? Retinopathy of Prematurity is generally diagnosed through a dilated eye examination performed by a pediatric ophthalmologist.
2 people with Retinopathy Of Prematurity have shared their first-person experience on this question at DiseaseMaps.
How do I know if I have Retinopathy Of Prematurity?
Could you have Retinopathy Of Prematurity? Early signs that prompted real patients to seek diagnosis, plus medically reviewed guidance.
Retinopathy of Prematurity (ROP) is a developmental eye disorder primarily diagnosed in infants born prematurely, characterized by abnormal blood vessel growth in the retina. Because Retinopathy of Prematurity is typically identified via specialized screening in the neonatal period, adults concerned about their vision should look for late-onset complications such as high myopia, retinal detachment, or strabismus.
How is Retinopathy of Prematurity identified?
Retinopathy of Prematurity is generally diagnosed through a dilated eye examination performed by a pediatric ophthalmologist. In infants, this involves checking for the vascularization of the peripheral retina. If you are an adult who was born prematurely, you may not have been formally diagnosed at birth, but you might experience symptoms related to the long-term effects of Retinopathy of Prematurity, such as sudden flashes of light, a "curtain" falling over your field of vision, or a significant decrease in visual acuity.
What are the red flags requiring urgent evaluation?
If you have a history of Retinopathy of Prematurity, you are at a higher lifetime risk for retinal issues. You should seek immediate care if you notice:
- A sudden increase in "floaters" or dark spots in your vision.
- Persistent flashes of light (photopsia) in your peripheral vision.
- A shadow or dark curtain appearing in any part of your visual field.
- A rapid, unexplained decline in central or peripheral vision.
How can I advocate for my eye health?
If you suspect you have complications from Retinopathy of Prematurity, be clear with your healthcare provider about your birth history. Tell your eye doctor: "I was born prematurely and I am concerned about late-onset complications related to Retinopathy of Prematurity." If your concerns are dismissed, request a referral to a retina specialist who has experience with the long-term sequelae of Retinopathy of Prematurity.
What tests should I ask for?
To assess your eye health, ask your ophthalmologist for a comprehensive dilated fundus examination. This allows the doctor to view the back of the eye and the retina in detail to check for scarring, thinning, or signs of previous Retinopathy of Prematurity damage.
Next steps
- Schedule a comprehensive eye exam with a retina specialist.
- Obtain your birth medical records to confirm your gestational age and birth weight, which are key risk factors for Retinopathy of Prematurity.
- Connect with the 15 community members on DiseaseMaps.org who have shared their experiences with Retinopathy of Prematurity.
Medical disclaimer: This information is for educational purposes only and does not replace professional medical advice, diagnosis, or treatment.
References
- NIH Genetic and Rare Diseases Information Center (GARD): Retinopathy of Prematurity
- Orphanet: Retinopathy of prematurity (ORPHA:3113)
- American Academy of Ophthalmology (AAO): ROP Clinical Guidelines
Posted Jun 10, 2017 by Josie 2150
Posted Sep 11, 2017 by Suzette 1850
