There are 45 people in the Saethre-Chotzen syndrome map
48 people with Saethre-Chotzen syndrome have joined the DiseaseMaps community map. They have shared 232 first-person answers and 5 stories about living with the condition.
Dominic was born in May 2014, via cesarean. From day one he had some face asymmetry. His forehead on the left protruded out, his eye slanted down, and his nose was crooked (leaned to the left). Doctors said he was just smushed and would return ...
3 people with Saethre-Chotzen syndrome have taken the SF36 survey. Mean of Saethre-Chotzen syndrome is 3033 points (84 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey