40 people with SAPHO syndrome have joined the DiseaseMaps community map. They have shared 132 first-person answers and 5 stories about living with the condition.
3 people with SAPHO syndrome have taken the SF36 survey. Mean of SAPHO syndrome is 1183 points (33 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey