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Living with Sjögren-Larsson Syndrome. How to live with Sjögren-Larsson Syndrome?
Living with Sjögren-Larsson Syndrome: how patients cope day to day and stay positive - real experiences and practical tips.
Translated from spanish
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To live with this syndrome is not easy as it always is attacking somewhere.
But the way (for me) to be able to live functional was making me friend of the syndrome. I realized that the syndrome is a part of me, and knowing me I could understand the why of the Syndrome. This has worked for me very well.
Of course you can be happy. In the time that it starts with the self-knowledge is like finding a key to feeling better at all levels. The syndrome is the somatization of years of eating, thinking, acting, feeling in a way that is not favorable and the challenge is to find () the road to health.
But the way (for me) to be able to live functional was making me friend of the syndrome. I realized that the syndrome is a part of me, and knowing me I could understand the why of the Syndrome. This has worked for me very well.
Of course you can be happy. In the time that it starts with the self-knowledge is like finding a key to feeling better at all levels. The syndrome is the somatization of years of eating, thinking, acting, feeling in a way that is not favorable and the challenge is to find () the road to health.
Posted Feb 22, 2017 by Lady Manser 1000
