98 people with Sotos Syndrome have joined the DiseaseMaps community map. They have shared 244 first-person answers and 10 stories about living with the condition.
Hi! I am Lesley and my daughter Lucy was diagnosed with Soto's syndrome when she was 7 months old. She was born 4 weeks early and was 7 lbs 8 Oz and had to stay in the nicu for almost 2 weeks. She failed the test that they use to test the babies musc...
Hi my name is Brooke,
My daughter Amelia was dignosed with sotos syndrome when she was 6months old, it has been a bumpy ride. She is getting there with the walking and talking and other problems she has with the help with pyshio and speech ther...
3 people with Sotos Syndrome have taken the SF36 survey. Mean of Sotos Syndrome is 2000 points (56 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
