A congenital birth defect where the spine doesn't form correctly in utero. Depending on the location and severity of the malformation, those effected may experience symptoms from mild back pain to paralysis.

There are 203 people in the Spina bifida map

207 people with Spina bifida have joined the DiseaseMaps community map. They have shared 256 first-person answers and 8 stories about living with the condition.

Spina bifida life expectancy

What is the life expectancy of someone with Spina bifida?

5 answers
Celebrities with Spina bifida

Celebrities with Spina bifida

1 answer
Is Spina bifida hereditary?

Is Spina bifida hereditary?

3 answers
Is Spina bifida contagious?

Is Spina bifida contagious?

1 answer

Spina bifida top 25 questions

Statistics of Spina bifida

203 People in the map
Statistics of Spina bifida
Healthcare professionals

1
Healthcare professional
Organizations of Spina bifida

5
Organizations
Researchers

3
Researchers

SPINA BIFIDA

Synonyms:
Paralysis
Loss of sensation
Hydrocephalus
Learning disabilities
Executive function disorder
Sexual dysfunction

Types:
Occulta
Myelomeningocele
Meningocele

SYSTEMS AFECTED

Muscular system
Muscular system
Nervous system
Nervous system
Skeletal system
Skeletal system
Urinary system
Urinary system

Symptoms

  • Paralysis
  • Loss of sensation
  • Hydrocephalus
  • Learning disabilities
  • Executive function disorder
  • Sexual dysfunction

Treatments

  • Frequent checkups with urologist, neurosurgeon, orthopedist

    • Who can help you

    Spina Bifida Association of New ZealamdSpina Bifida Association of New Zealamd
    GarthGarth
    KerrinKerrin
    Daniel's MumDaniel's Mum
    Jeff.BourneJeff.Bourne
    doreendoreen

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    Stories of Spina bifida

    STORY
    Spina bifida stories
    DANIEL'S MUM'S STORY
    At 12 weeks pregnant I politely declined to take part in any antenatal screening, confident in my belief that even if something was not quite right that I would continue with the pregnancy anyway (Down Syndrome being top of mind considering that I wa...
    Spina bifida stories
    LANDYNS JOURNEY

    Tell your story and help others

    Tell my story

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    Spina bifida forum

    QUESTION

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    Statistics of Spina bifida

    25 people with Spina bifida have taken the SF36 survey. Mean of Spina bifida is 1527 points (42 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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