Short answer · Medically reviewed summary · Last updated: 2026-05-08

The ICD-10-CM codes for spina bifida range from Q05.0 to Q05.9, depending on the specific anatomical location and the presence of hydrocephalus. In the legacy ICD-9-CM classification system, spina bifida was categorized under code 741, with sub-classifications (741.0 through 741.9) denoting the severity and associated complications. What are the medical classifications for spina bifida? Because spina bifida is a complex neural tube defect, medical coding is highly specific to the patient's presentation.

1 people with Spina bifida have shared their first-person experience on this question at DiseaseMaps.

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ICD10 code of Spina bifida and ICD9 code

ICD-10 and ICD-9 codes for Spina bifida, with classification details for clinicians, coders and patients.

ICD9 and ICD10 codes of Spina bifida

The ICD-10-CM codes for spina bifida range from Q05.0 to Q05.9, depending on the specific anatomical location and the presence of hydrocephalus. In the legacy ICD-9-CM classification system, spina bifida was categorized under code 741, with sub-classifications (741.0 through 741.9) denoting the severity and associated complications.



What are the medical classifications for spina bifida?


Because spina bifida is a complex neural tube defect, medical coding is highly specific to the patient's presentation. Clinicians use these codes to document the severity of spina bifida, particularly when differentiating between spina bifida cystica (with or without hydrocephalus) and spina bifida occulta. Accurate coding is essential for managing the multidisciplinary care required for spina bifida, which often involves the muscular, nervous, skeletal, and urinary systems.



What systems are impacted by spina bifida?


Spina bifida is a lifelong condition that requires coordinated care across multiple specialties. Patients often experience a range of systemic challenges, including:



  • Nervous System: Potential for hydrocephalus, paralysis, and sensory loss.

  • Urinary System: Neurogenic bladder, which necessitates frequent monitoring by a urologist.

  • Skeletal/Muscular System: Orthopedic complications affecting mobility and posture.

  • Cognitive Function: Challenges with learning disabilities and executive function disorders.



How does the community support those with spina bifida?


Navigating the medical and emotional complexities of spina bifida can feel isolating, but you are not alone. Currently, 207 people with spina bifida have joined the DiseaseMaps.org community to share their personal experiences, symptom management strategies, and emotional support. Connecting with others who understand the day-to-day reality of living with this condition can be a vital part of your care plan.



Next steps



  • Consult with a multidisciplinary team including a neurosurgeon, urologist, and orthopedist to ensure your care plan is current.

  • Review your medical records to ensure your specific diagnosis is correctly reflected in your ICD-10 documentation.

  • Join the DiseaseMaps.org community to share insights with the 207 members currently managing spina bifida.



Medical disclaimer: This information is for educational purposes only and should not replace professional medical advice, diagnosis, or treatment from your healthcare provider.



References



  • NIH Genetic and Rare Diseases Information Center (GARD): Spina Bifida

  • Orphanet: Neural tube defects (ORPHA:647)

  • World Health Organization (WHO): ICD-10 Version 2019 (Chapter XVII: Congenital malformations)

  • Spina Bifida Association: Clinical Care Guidelines

Author: DiseaseMaps Editorial Team
Reviewed against authoritative medical sources (NIH GARD, Orphanet, OMIM)
Last updated: 2026-05-08
Medical disclaimer: This information does not substitute professional medical advice. Always consult your doctor before making health decisions.
Source: DiseaseMaps.org
2 answers
Translated from spanish Improve translation
ICD-10 Q05 , ICD9 741

Posted May 18, 2017 by Edith 2100

ICD9 and ICD10 codes of Spina bifida

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