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Story about Spinal Muscular Atrophy .

My daughter Ksenia has SMA 1

Oct 26, 2016

By: Ksenia

Spinal Muscular Atrophy
The start of the disease was when she was at the age of 2 weeks since 12 sep 2016. Confirmed research results SMA 26 Okt 2016.  Now we are on the Roche clinical trials in Italy until 2019. Following the contract we cant provide any information about our condition or investigational results.

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