Stories of Stargardt Disease

STARGARDT DISEASE STORIES

VIEWS

BY

My grandson was,after many tests, diagnosed with Stargardts disease. What a shock to parents and grandparents! At first we tried to keep him in a mainstream school, bur this did not work out. The school still persisted with the isea that he had to wr...

1134

7/13/26, 9:23 PM by Koos

I WILL SURVIVE

EVEN BEFORE I KNEW I HAD DISABILITIES, I HAVE ALWAYS FOCUSED ON MY ABILITIES AND THAT WILL NEVER CHANGE. JUST OUT OF HIGH SCHOOL I JOINED THE NATIONAL GUARD. AFTER FIFTEEN YEARS, AND ATTAINING THE RANK OF MASTER SERGEANT (E-8) AS THE SENIOR INSTRUCTO...

868

by Harry Batten

A LITTLE ABOUT ME

HELLO EVERYONE MY NAME IS HEATHER AND I HAVE STARGARDT'. I STARTED TO NOTICE CHANGES IN MY VISION WHEN I WAS 16 YEARS OLD I WAS DIAGNOSED AT THE AGE OF 19 I AM NOW 29 YEARS OLD AND A MOTHER OF 4. AT THE AGE OF 21 MY VISION WAS 20/400 IN BOTH EYES. ...

836

by Heather

ELISABETH'S STORY

Had symptoms since I was fine years old. Got maculopathy diagnosis in 2001. In 2011 stargardt diagnosis was confermed with gene testing.

670

4/27/17, 1:43 PM by Elisabeth

SOPHIE'S STORY

I have two daughters with stargardts both been diagnosed at moorfields . 18 year and 7 year old . 18 year old was diagnosed when she was 8 after being told for 2 years her eye sight was fine and she is seeking attention. Now stargardts is and always ...

What is the history of Stargardt Disease?

History of Stargardt Disease: when and how it was discovered, and the milestones in research since, medically reviewed.

History of Stargardt Disease

What is the life expectancy of someone with Stargardt Disease?

3 answers

Celebrities with Stargardt Disease

2 answers

Is Stargardt Disease hereditary?

3 answers

Is Stargardt Disease contagious?

3 answers

ICD10 code of Stargardt Disease and ICD9 code

3 answers

Is there any natural treatment for Stargardt Disease?

3 answers

Living with Stargardt Disease. How to live with Stargardt Disease?

3 answers

Stargardt Disease diet. Is there a diet which improves the quality of life ...

3 answers

Find people with Stargardt Disease through the map. Connect with them and share experiences. Join the Stargardt Disease community.

STARGARDT DISEASE STORIES

VIEWS

BY

1134

868

836

670

660

Tell your story and help others

STARGARDT DISEASE FORUM

VIEWS

BY

Ask a question and get answers from other users.

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Add your symptoms and discover your soulmates map