There are 269 people in the Stevens Johnson Syndrome map
294 people with Stevens Johnson Syndrome have joined the DiseaseMaps community map. They have shared 298 first-person answers and 17 stories about living with the condition.
I got SJS/TENS from taking lamictal. I was in the ICU burn unit at Grady hospital in Atlanta for 7 weeks. 5 of those I was in a medically induced coma. I lost 90% of my skin, all my hair and fingernails. My skin has come back mostly without scars. Ho...
I was in a construction accident and blew my knees out where they were bone on bone I received 3 injections of Euefleux shots and after the second shot I broke out with blisters and hives nobody knew what they were I was treated for three and a half ...
I had gone to one hospital with a severe rash, I met a physician who know exactly what this was. I was transfered to the Burn Unit, where I received an active coat treatment and my body wrapped in guaze. With IV medication and constant lotion applied...
My granddaughter had TEN a year ago. She had a rash that was diagnosed as Scarlett fever. After 24hours she wasd admitted to our local emergency ward. She was diagnosed with SJS within a few hours and transferred to Evelina London. The care she had t...
21 people with Stevens Johnson Syndrome have taken the SF36 survey. Mean of Stevens Johnson Syndrome is 1648 points (46 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey