271 people with STXBP1 have joined the DiseaseMaps community map. They have shared 255 first-person answers and 7 stories about living with the condition.
5 people with STXBP1 have taken the SF36 survey. Mean of STXBP1 is 1701 points (47 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey