World map of STXBP1 View more
  2. STXBP1
  3. Forum
  4. Top questions
  5. Question 6
6

Is it advisable to do exercise when affected by STXBP1? Which activities would you suggest and how intense should they be?

Exercise with STXBP1: which activities patients recommend or avoid, and what the evidence says.

STXBP1 sports
3 answers
Activity as tolerated on a case by case basis
Posted Mar 26, 2017 by Aparker77 1002
Yes it is possible to do excersice although you will get tired faster than most due to low muscle tone so be careful when excersizing and never try to keep up with others or it will be hard on your body. Go at your own pace
Posted Jun 24, 2018 by Jaylenesmommy 2500
Translated from spanish Improve translation
Walk to consolidate ambulation
Posted Mar 26, 2017 by Julio Angel 1000

STXBP1 sports

STXBP1 life expectancy

What is the life expectancy of someone with STXBP1?

7 answers
Celebrities with STXBP1

Celebrities with STXBP1

1 answer
Is STXBP1 hereditary?

Is STXBP1 hereditary?

2 answers
Is STXBP1 contagious?

Is STXBP1 contagious?

2 answers
ICD9 and ICD10 codes of STXBP1

ICD10 code of STXBP1 and ICD9 code

1 answer
Natural treatment of STXBP1

Is there any natural treatment for STXBP1?

3 answers
Living with STXBP1

Living with STXBP1. How to live with STXBP1?

4 answers
STXBP1 diet

STXBP1 diet. Is there a diet which improves the quality of life of people w...

5 answers

World map of STXBP1

Find people with STXBP1 through the map. Connect with them and share experiences. Join the STXBP1 community.
View map

Stories of STXBP1

STXBP1 STORIES
STXBP1 stories
JAYLENE’S JOURNEY
The beginning of this year has been by far the most difficult for my family... the year started off amazing with the birth of our second babygirl Jaylene but quickly our happy blissful moment turned into the biggest fear of our lives when Jaylene beg...
STXBP1 stories
LONG JOURNEY FOR A DIAGNOSIS
Kyle had symptoms from birth- difficulty feeding, severe reflux, hypotonia, exaggerated startle, and missed developmental milestones. His seizures started at 9 months of age. He went on to develop Parkinsonism (tremor, ataxia). When he would get s...
STXBP1 stories
OUR BEAUTIFUL DAUGHTER
We just got the news after genetic testing that our beautiful 3 year old has Stxbp1. We noticed at 3 months she was not developing like her twin sister and her older brother had developed. She made some gains at 5 months then seemed to regress so we ...

Tell your story and help others

Tell my story

STXBP1 forum

STXBP1 FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map