- Tarlov Cyst
- Interviews
Cindy's interview
How did all start?
Tailbone pain
Do you already have a diagnosis? How long did it take you to get it?
Yes .. it took 6 months.. I was diagnosed Nov 2013
For what medical specialties have you been treated? What has been the most useful specialty for your?
None
What has been the most useful thing for you so far?
Just dealing with the pain and weakness
What have been your biggest difficulties?
Sleep, traveling and walking for more than 20 minutes
How has your social and family environment reacted? Have your social or family relationships changed?
Yes.. I'm not able to do everything I use to
What things have you stopped doing?
Travel, movies, hiking, bike rides and long walks
What do you think about the future?
Long road
So far, which years have been the best years in your life? What have you done during them?
Before the pain started
What would you like to do if you didn’t have your condition?
Traveling
If you had to describe your life in a sentence, what would it be?
Boring and lonely
Finally, what advice would you give to a person in a similar situation?
Stay off the meds
