Tarlov Cyst Disease

Dec 14, 2019

By: Pam

Year Condition Began: 2010

Tarlov Cyst

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All the symptoms related to this no Doctor would know until I reached out to the foundation.It was found in 2010 with nerve pain in my foot an Orthopedic oncologist sent me for MRI after that just a revolving door of Doctors, no answers.Spoke with Neurosurgeon in summer of 2019.Im candidate for surgery but currently issues with Insurance and Doctors in my state will not allow for me to proceed.On good days I live like there's no tomorrow and bad days I take it easy, but mostly I don't want to be alone and getting others, family and friends to understand is not possible.No support for me there.Blessed are those who have love in their lives and support from family, friends.