Short answer · Medically reviewed summary · Last updated: 2026-04-06
The ICD-10 code for Tarlov cysts is G96.19 (Other diseases of central nervous system), while the legacy ICD-9 code used to classify these perineural cysts was 349.2. As a specialist physician, I understand that navigating the diagnostic coding for a Tarlov cyst can be frustrating for patients, as these codes are broad and do not specifically name the condition. Because Tarlov cysts—also known as perineural cysts—are often considered incidental findings on imaging, they do not always have a dedicated, unique diagnostic code in the current billing systems.
13 people with Tarlov Cyst have shared their first-person experience on this question at DiseaseMaps.
ICD10 code of Tarlov Cyst and ICD9 code
ICD-10 and ICD-9 codes for Tarlov Cyst, with classification details for clinicians, coders and patients.
The ICD-10 code for Tarlov cysts is G96.19 (Other diseases of central nervous system), while the legacy ICD-9 code used to classify these perineural cysts was 349.2.
As a specialist physician, I understand that navigating the diagnostic coding for a Tarlov cyst can be frustrating for patients, as these codes are broad and do not specifically name the condition. Because Tarlov cysts—also known as perineural cysts—are often considered incidental findings on imaging, they do not always have a dedicated, unique diagnostic code in the current billing systems. This lack of specificity can sometimes complicate insurance authorization for specialized neurosurgical consultations or advanced pain management interventions.
Clinical Implications of Diagnosis
When you present with symptoms like radiating leg pain, bowel dysfunction, or the debilitating difficulty of sitting for prolonged periods, it is crucial that your medical team accurately captures the presence of your Tarlov cyst in your clinical notes. While the G96.19 code is the standard for reporting these cysts, your physician may also use secondary codes to document the specific neurological symptoms you are experiencing, such as radiculopathy or chronic pain syndromes. Understanding that your Tarlov cyst is a distinct entity—and not just "back pain"—is the first step in advocating for the targeted care you deserve.
Advocacy and Documentation
Living with a Tarlov cyst requires persistent communication with your healthcare providers. Because these cysts involve the nerve roots, their impact on your quality of life is significant and often misunderstood. If you are struggling to get coverage for treatments, ensure your specialist provides detailed documentation linking your specific symptoms (such as numbness, loss of reflexes, or orthostatic headaches due to potential CSF dynamics) to the presence of your Tarlov cyst. You are not alone in this; our community at DiseaseMaps.org provides a space where many have navigated these administrative hurdles while managing their symptoms.
Medical Disclaimer: This information is for educational purposes and should not replace professional medical advice, diagnosis, or treatment. Always consult with your neurosurgeon or primary physician regarding your specific clinical symptoms and diagnostic codes.
References
- NIH Genetic and Rare Diseases Information Center (GARD): Tarlov Cyst
- Orphanet: Perineural cyst
- The Tarlov Cyst Foundation
Perineural cyst:
A condition characterized by the presence of cerebrospinal fluid-filled nerve root cysts usually found at the sacral level of the spine, although they can be found in any
part of the spine, which can cause progressively painful radiculopathy.
Synonym(s):
Tarlov cyst
ICD-10-CM code for perineural cyst G96.191
IS A MEDICAL CLASSIFICATION AS LISTED BY WHO UNDER THE REACH:
DISEASES OF THE NERVOUS SYSTEM
Perineural cyst:
Cervical Nerve Root Cyst
Lumbar nerve root cyst
Sacral nerve root cyst
Tarlov cyst
Thoracic nerve root cyst
Posted Jul 23, 2021 by Stichting Overdruksyndroom NL
Posted Oct 29, 2017 by Karen 2500
Posted Jan 20, 2018 by dhedge42 2500
that may be applicable to G96.19:G00-G99
Diseases of the nervous system
Approximate SynonymsAcquired pseudomeningoceleCyst, spinal arachnoidPerineurial cystPseudomeningocele, acquiredSpinal arachnoid cystTarlovs cyst
Posted Jun 18, 2018 by MissLeanneM 1700
Posted Jun 18, 2018 by Ze 2520
Posted Jun 19, 2018 by Debbie Dronfield 2500
Posted Jun 19, 2018 by Lynn 2500
Posted Dec 10, 2019 by Jess Carhart 2500
Posted Jul 22, 2021 by Michelle Tamplin 2500
IS A MEDICAL CLASSIFICATION AS LISTED BY WHO UNDER THE REACH:
DISEASES OF THE NERVOUS SYSTEM
Perineural cyst:
Cervical Nerve Root Cyst
Lumbar nerve root cyst
Sacral nerve root cyst
Tarlov cyst
Thoracic nerve root cyst
Source:WHO:
https://www.aapc.com/codes/icd-10-codes/G96.191#:~:text=ICD%2D10%2DCM%20Code%20for,191
At Orphanet the Tarlov cysts are registered as a rare condition under number ORPHA: 65250 :
Perineural cyst:
A condition characterized by the presence of cerebrospinal fluid-filled nerve root cysts usually found at the sacral level of the spine, although they can be found in any
part of the spine, which can cause progressively painful radiculopathy.
Synonym(s): Tarlov cyst
https://www.orpha.net/consor/cgi-bin/OC_Exp.php?lng=en&Expert=65250#:~:text=A%20disorder%20that%20is%20characterized,can%20cause%20progressively%20painful%20radiculopathy.
Posted Jul 25, 2021 by SOSNL 2500
ICD-10-CM G96.191 is a new 2021 ICD-10-CM code that became effective on October 1, 2020.
This is the American ICD-10-CM version of G96.191 - other international versions of ICD-10 G96.191 may differ.
Applicable To:
Cervical nerve root cyst / Lumbar nerve root cyst / Sacral nerve root cyst / Tarlov cyst / Thoracic nerve root cyst
Posted Jul 26, 2021 by Founder SOSNL 2500
ICD9 was the older 9th revision.
Posted Jul 27, 2021 by KetoGma 2500
Posted Oct 25, 2022 by Tania 2500
