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Is it easy to find a partner and/or maintain relationship when you have Tarlov Cyst?

People with experience in Tarlov Cyst give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Tarlov Cyst. What are the possible difficulties in having a relationship?

Couple and Tarlov Cyst
13 answers
For some it is hard, because not every partner in a relationship understand whats going on, this is even harder when a patient is diagnosed yet. So knowledge about this disease is very needed.

Posted Jul 23, 2021 by Stichting Overdruksyndroom NL
Yes. I have a very understanding husband. He takes awesome care of me and the household. My family is very supportive also.

Posted Oct 29, 2017 by Karen 2500
Yes but an understanding partner that is informed of disease

Posted Jan 20, 2018 by dhedge42 2500
Yes and no. There is a lot of intimacy that will become painful. Another symptom of Tarlov is PGAD, for male and female.

Posted Jun 18, 2018 by Ze 2520
It takes a person with great fortitude to be able to live with a person with this disease. It is very hard on both people. Compassion and understanding of limitations are key

Posted Jun 19, 2018 by Debbie Dronfield 2500
Yes it has nothing to do with a relationship just need to find an understanding partner

Posted Jun 19, 2018 by Lynn 2500
My guess is, NO, it would not be easy.

Posted Dec 10, 2019 by Jess Carhart 2500
It's difficult sometimes to have a relationship as the symptoms can effect you massively

Posted Jul 22, 2021 by Michelle Tamplin 2500
It could be difficult to find/maintain relationship in this disease. It is not uncommen that partners cannot handle the seriousness of this disease.

Posted Jul 25, 2021 by SOSNL 2500
Een partner moet zich ervan bewust zijn dat Tarlov-cyste ziekte een progressief invaliderende aandoening is. Met elkaar in gesprek blijven en elkaar de ruimte geven indien er reeds een partner is. Eerlijk zijn wanneer er een partner gezocht wordt.

Posted Jul 26, 2021 by Founder SOSNL 2500
When symptoms are severe it can be very difficult to find or maintain relationships due to the inability to be active, the embarrassment of bowel and bladder issues and sexual dysfunction. It is very important to educate your partner on TCD and make them part of your medical decisions.

Posted Jul 27, 2021 by KetoGma 2500
No is hard. This condition requires support from comprehensive people and supportive

Posted Oct 25, 2022 by Tania 2500
Translated from spanish Improve translation
Find a partner if you suffer from cysts Tarlov is more complicated than if you don't suffer from this. Your social life may be limited, because the pain means that often you can't get out and lead a normal life. If the condition is severe and intense pain many people who suffer almost can't be sitting more than 30 minutes so that its life is quite limited.

In the same way if you already have a partner, keep it is more complicated than if you're healthy, because it is not easy to live with someone with a disease like this.

Posted May 26, 2017 by Sara 600

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Tarlov Cyst stories
My nightmare began with an accident while on duty in March 2011. I was the passenger in a motor vehicle when the accident happened. After having an MR I scan done it was reported that I have multiple Tarlov cysts on my spine (too many to count). I ...
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Hi, I am Lisa. I have has several ct scans and mri's through the years which showed terms such as perinueral cysts, and Tarlov Cysts for many years. When I would ask what they were and if they posed any problem, I would be quickly brushed off and tol...
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I fell from a horse 4 years ago landing on my tailbone and after an X-ray they could see I had bent it! After several weeks of chiropractic treatment I was back in the saddle and felt fine. Then in feb 2015 I I had a fall whilst skiing. It was partic...
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When I was pregant at 21, I ended up on STD due to having severe pain in my sciatica - I worked a desk job and could not handle sitting for long periods of time. Even after I gave birth, I had severe lower back pain. I tried everything - chiropractic...
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this showed tarlov perineaul cyst through out spine, bilateral nerve sleeve root cysts.maybe cause for my low intracranial pressure.

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What is the best treatment for Tarlov Cyst?
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Does anyone know of any doctors around the cincinnati Ohio area that believes tarlov cysts cause pain. 

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