Story about Treacher Collins syndrome , Apert Syndrome, Cleidocranial Dysplasia, Crouzon syndrome, Parry-Romberg syndrome / Progressive hemifacial atrophy, Fibrous Dysplasia, Goldenhar Syndrome, Moebius Syndrome, Nager Syndrome, Pierre Robin Syndrome, Saethre-Chotzen syndrome, Hydrocephalus, Freeman Sheldon Syndrome, Neurofibromatosis, Stickler syndrome, Sturge Weber Syndrome.

Advocating for the Cause of Craniofacial Differences


I am currently working as a Craniofacial Awareness Advocate.

 

As a high-school and college dropout, I earned college degrees after returning to school - studying Criminal Justice with a minor in Psychology. I hope to continue on a path of study that will allow me to combine my interests in Community Psychology and Law with my interests in Craniofacial Anomalies. 

 

We have a variety of support groups and an exclusive group page for craniofacial events and gatherings within the U.S. that is regularly updated. Additionally, we have a new medical discussion and support group page for educational convenience and clinical connection.

 

Please message me directly if you have any questions or concerns and I will do my best to help or at least direct you to the most fitting resource.

 

To find an event nearest you please visit https://www.facebook.com/groups/CraniofacialEventsConnection/

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