There are 29 people in the Trisomy 13 Syndrome / Patau Syndrome map
32 people with Trisomy 13 Syndrome / Patau Syndrome have joined the DiseaseMaps community map. They have shared 69 first-person answers and 5 stories about living with the condition.
Pregnant with our 4th child, some concerns where seen at 20 week scan. Eventually leading to the diagnosis of Trisomy 13..Currently 30 weeks pregnant and taking each day as it comes. Jeremiah has Spina Bifida, causing under developed cerebellum, Dext...
1 people with Trisomy 13 Syndrome / Patau Syndrome have taken the SF36 survey. Mean of Trisomy 13 Syndrome / Patau Syndrome is 1370 points (38 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
